Hi folks,
Been a while since I posted on these forums, hope everyone is doing well.
I just felt the need to vent somewhere as I’m getting really down with how low my quality of life is- and this condition also contributes to this.
Previously I’ve attended a workshop and thankfully I’m now aware of this community- which is amazing knowing I’m not alone with this condition.
I’m just feeling really sad about how much this condition/some of my other health problems have taken away opportunities from me to do things in life.
I feel so restricted by it and angry how it controls so much, I’m barely able to leave home anymore due to it all, and I feel as if life is passing me by.
Don’t get me wrong, I try to be grateful for everything that I do have, but it’s so hard to see others on social media etc living life and having fun in social settings.
One of my issues was I had problems with spraying whilst peeing, so much so that I had a circumcision thinking it might help- it helped with some issues I had but not the spraying- I feel it’s actually made it worse to the point I’m now frequently getting covered in urine sometimes and requiring to change. I mentioned this to the urologist during my procedure who looked and seen no obstruction to my urethra so there’s nothing they can do. I’m only 31 and it’s honestly devastating living a life like this.
On top of it all, because a lot of professionals aren’t aware of this condition, I feel they don’t really appreciate and/or understand the impact living with this condition has. I’ve even had some make jokes about having this condition which is soul destroying.
I’m extremely grateful for the UKPT and everything they do to raise awareness and help people with this issue.
Even just being able to post this message helps knowing there is a community of people who can relate to it.
David
4 months 1 week ago