Privacy Policy

UKPT Privacy Policy

Our Commitment

The UK Paruresis Trust started in 2002 as a group of people experiencing, or having experienced, avoidant paruresis.  We organised ourselves into a self-help charity to help people cope with urinary dysfunction that has a psychological or social origin.  We now aim to provide information and relief for adults experiencing the social anxiety Avoidant Paruresis (aka Shy Bladder Syndrome), particularly by:

  • the provision of internet based information and support
  • the provision of desensitisation workshops
  • the promotion of the concept of individual privacy in the design of public toilets
  • the promotion of research into all aspects of the condition, its cause and treatment
  • the raising of public awareness, including that of the medical profession.

We want to provide a website service which the people we are in contact with feel confident to use. We want them to feel that the UKPT website is a safe place in which they can give their views or discuss their issues without fear of their information being passed on or used in any way to which they have not agreed.


What is this Privacy Policy for?

This privacy policy is for the website UKPT Paruresis Trust and served by the charity UK Paruresis Trust governing the privacy of the users who choose to use it.

The UKPT have had a website operating successfully since 2002, with no complaints about breach of privacy.

This policy sets out the different areas where user privacy is concerned and outlines the obligations and requirements of the users, the website and website owners. Furthermore, the way this website processes, stores and protects user data and information will also be detailed within this policy.

It is difficult to detail all aspects of privacy without descending into legalese, and sounding off-putting. Bear in mind that all those involved in running the UKPT have or have had paruresis, and so are very aware of the need for privacy, in a way that transcends any policy.


The Website

This website and its owners take a proactive approach to user privacy and ensure the necessary steps are taken to protect the privacy of its users throughout their visiting experience. This website complies with all UK national laws and requirements for user privacy.


Use of Cookies

This website uses cookies to better the user’s experience while visiting the website. Where applicable this website uses a cookie control system allowing the user on their first visit to the website to allow or disallow the use of cookies on their computer / device. This complies with recent legislation requirements for websites to obtain explicit consent from users before leaving behind or reading files such as cookies on a user's computer / device.

Cookies are small files saved to the user's computers hard drive that track, save and store information about the user's interactions and usage of the website. This allows the website, through its server to provide the users with a tailored experience within this website.

Users are advised that if they wish to deny the use and saving of cookies from this website on to their computers hard drive, they should take necessary steps within their web browser’s security settings to block all cookies from this website and its external links.

This website uses tracking software to monitor its visitors to better understand how they use it. This software is provided by Google Analytics which uses cookies to track visitor usage. The software will save a cookie to your computer’s hard drive in order to track and monitor your engagement and usage of the website, but will not store, save or collect personal information. View and read Google's privacy policy by following the link in the Resources section of this page.

Other cookies may be stored to your computer’s hard drive by external links. Such cookies are used for conversion and referral tracking and typically expire after 30 days, though some may take longer. No personal information is stored, saved or collected.


Contact & Communication

Users contacting this website and/or its owners do so at their own discretion and provide any such personal details requested at their own risk. Your personal information is kept private and stored securely until a time it is no longer required or has no use, as detailed in the Data Protection Act 1998. The website uses an online form to allow a user to submit an email to the UKPT. Every effort has been made to ensure that this is a safe and secure process, but users are advised that they use it at their own risk.

This website and its owners use any information submitted to provide you with further information about the products / services they offer or to assist you in answering any questions or queries you may have submitted. This includes using your details to subscribe you to any email newsletter program the website operates but only if this was made clear to you and your express permission was granted when submitting any form to email process. Or whereby you, as the consumer, have previously purchased from or enquired about purchasing from UKPT a product or service that the email newsletter relates to. This is by no means an entire list of your user rights in regard to receiving email marketing material. Your details are not passed on to any third parties.


External Links

Although this website only looks to include quality, safe and relevant external links, users are advised to adopt a policy of caution before clicking any external clickable web links mentioned throughout this website eg the International Paruresis Association or Gift Aid guidance.

The owners of this website cannot guarantee or verify the contents of any externally linked website despite their best efforts. Users should therefore note they click on external links at their own risk, and this website and its owners cannot be held liable for any damages or implications caused by visiting any external links mentioned.


Social Media Platforms

Communication, engagement and actions taken through external social media platforms that this website and its owners participate on are subject to the terms and conditions as well as the privacy policies held with each social media platform respectively.

Users are advised to use social media platforms wisely and communicate / engage upon them with due care and caution in regard to their own privacy and personal details. This website nor its owners will ever ask for personal or sensitive information through social media platforms and encourage users wishing to discuss sensitive details to contact them through primary communication channels such as by telephone or email.

This website may use social sharing buttons which help share web content directly from web pages to the social media platform in question. Users are advised before using such social sharing buttons that they do so at their own discretion and note that the social media platform may track and save your request to share a web page respectively through your social media platform account.


Shortened Links in Social Media

This website and its owners through their social media platform accounts may share web links to relevant web pages. By default some social media platforms shorten lengthy urls [web addresses] (this is an example:

Users are advised to take caution and exercise good judgement before clicking on any shortened urls published on social media platforms by this website and its owners.

Despite the best efforts to ensure only genuine urls are published, many social media platforms are prone to spam and hacking and therefore this website and its owners cannot be held liable for any damages or implications caused by visiting any shortened links.


Resources & Further Information


Our contact details

UK Paruresis Trust

P.O. Box 182, Kendal, Cumbria, LA9 9AE


Chairperson: Andrew Smith

Copyright © 2017 United Kingdom Paruresis Trust. All Rights Reserved.

UK Charity Registration Number 1109541
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