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[quote="andrew post=440 userid=123"]Hi Christian

I can totally relate to your experiences, including the difficulty in getting in touch, so I am really glad you have done so at last.

One of the things SHughs recommended was coming to one of our workshops because he found it uplifting and useful. That will totally turn you round and move you forward. Unfortunately the lockdown meant we had to cancel upcoming workshops until the situation resolves.

What you can do with respect to sailing is to use disposable catheters. When you need to pee, you slide one in, which lets your bladder empty, slide it out and dispose of it. This is totally different to hospital catheters: they are lubricated, sterile, discreet, and are comfortable to use. Their main users are people with injuries, or hemiplegic, so are a “normal” utility.

You will need to see your GP, and overcome their ignorance of the condition. They can prescribe catheters on the NHS. The best way is to describe how the body locks up despite your wish to pee, and that letting the bladder fill up does not help but instead makes it worse.

Some GPs can be awkward about catheters. The two points that may be raised are:
 1. "That is not the solution". To this you have to be gently assertive by replying: "so when I get urinary retention say on plane or a boat, what am I supposed to do?". Obviously there is no answer to this.
 2. Some GPs say that infection is a problem: while correct for in-dwelling catheters in hospitals, the men we know of who use catheters say that infection is rare. (NB for obvious reasons it is more common in female users)

Take some evidence with you: on our website under Professional, General practitioners, are several professional articles. You could print them off and take them with you. Mention also the existence of the UKPT, a registered charity, that has clinical psychologists are advisors.
You can also email me on the support address and I can post you our glossy brochure to give them.

Now about desensing. You say you struggle in cubicles, which is very common. The trick is to start not with trying to pee, but with an empty bladder. Go in the cubicle and go through the motions: unzip, get it out, stand there, and read your reactions. Just hang in there so long as your anxiety does not ramp up, and then leave. Reflect on your feelings and fears. Examine them, was there any evidence to support your fear? Now repeat the exercise, as often as needed for you to get comfortable with being in a cubicle. Only then consider drinking enough to cause you to need a pee, and go for it. This is best done in a large anonymous facility like a shopping mall or a motorway services.

That’s enough for now. Have a think and get back to me with comments.

Cheers

Andrew[/quote]

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Topic History of: Looking for some help please

Max. showing the last 6 posts - (Last post first)

andrew

6 years 5 months ago

Hi SHughs

I don't think I have your email address? Could you email me at the address under Contact?Or prompt my memory

Andrew

SHughs

6 years 5 months ago

No worries. Perhaps Andrew can pass on my email so you can get in touch later. All the best.

goldenhill2000

6 years 5 months ago

Hi, Thank you for your message and I am sorry for misspelling the name Hughs.
As I mentioned to Cane it would be good to meet and chat at some point, I think a workshop is definitely the way forward once they are up and running again.

goldenhill2000

6 years 5 months ago

Hi Cane, Have you had similar experiences with locking up etc ?
It would be good to plan to meet up once lock down restrictions have been eased, I think it is good to confide in someone as S Hughes mentioned in one of the earlier messages.
S Hughes has suggested either meeting one or both of us ?

SHughs

6 years 5 months ago

I'd be happy to meet up with one or both of you when lockdown restrictions have been eased a bit, preferably in London or to the North of London.

Cane

6 years 5 months ago

Hi would you like to try together?

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