Posted by Joe on 4/11/2009, 1:05 am, in reply to "Re: Nobody knows about paruresis =("
how long did it take for the medical industry to recognize erectile dysfunction as a real medical problem? how long did those men feel the same level of embarrassment and humiliation? today, you can't watch any TV or read health magazines without seeing commercials and ads, advertising meds for ED.
my point was...if someone wrote a book about it, then why have they not spread the word throughout the medical industry? (do they want ALL the profit?) why have they not mass produced brochures to send out? (they do get large donations and huge amounts of money for workshops). I've seen the head office, it's pretty small by professional standards and its above a restaurant (like a rented room). i dont see those who say it's so common, doing anything other than creating a website and selling a book to help those who still have no clue whats wrong with them. and yet, they call them selves, international.
there are people out there, who have no clue this website exists, and it's fate or chance that they stumble in here or that other website.
if they saw a brochure at the doctors office, or pharmacy, or clinic, instead of relying on their ability to search keywords, they might find it not so embarrassing or humiliating...if they see its a "real" condition, they will get help.
besides...not ALL people have the internet.
but most people will at some point, go see a doctor, or go to the drug store, or some type of clinic.
i dont see the founders of AP doing anything except relying on their website and search engines, to be found by those who need help.
leaving it up to the individual to find help for themselves on their own, is what happened to me...it ruined my life and i spent 20 years asking doctors. how many other people out there are going through the same thing, completely lost in their lives? i commited suicide when i was 15. how many other teens have commited suicide? and IPA deletes posts that talk about that. i think it's obvious, IPA has done nothing to advance the knowledge and help for others. just because there is a cure, and IPA is there, does not mean they are helping others find it. i find it highly irresponsible, that their orginazation expects other people to find them, on their own, when they know damn good and well, most sufferers of AP are too afraid to say anything. i suffer from it and will not register just to read their forum. why are they so secret and private about it? is not, ED as private? so...who is responsible for spreading the knowledge that there is help? those who suffer? or the founding website that sells books? think how many more books they could sell and how many more people they could help, if they went public...plus, the publicity would release a huge amount of stress for those who suffer...it would be accepted by the main stream. hmm.
so...to reiterate. doctors and shrinks don't know what AP is because, nobody is doing anything to let them know its a problem. I dont get the profits from book sales, etc...to spread that word...IPA gets those profits.
/rant1048
Responses
« Back to index | View thread »
Responses are not allowed!